Update:
Well, the plan didn't last very long.
The surgeon has now said that he doesn't want to do another colonoscopy, he doesn't think any benefit will come from it, because the problem lies in the terminal ileum (small bowel) and not the large bowel.
My first thought was - thank god for that, I don't have to go through all that Kleen prep stuff again.
Second thought - Why do it in the first place then, if other tests such as a barium enema or MRI scan is good enough to make a diagnosis.?

The plan has now moved onto considering prescribing an autoimmune suppressant medicine. I had to go for a blood test called a TMPT test, to check whether I have/have not got an enzyme called thiopurine s-methyltransferase.

Not all people make this enzyme - it depends on your gene whether you do or don't, but it's important to test before prescribing autoimmune suppressant drugs like the medicine called azathioprine because of the severe side effects.
One of the side effects from this drug is hair loss - yep, that really does make me happy (NOT) and the only advice they give, is to speak with your doctor - that's really helpful, is he going to buy me a top of the range wig then?

I've been on the PPI and steroid medicines for 2 weeks now, and most days I've felt like poo because the tiredness is unbelievable - I'd read where some Crohn's sufferers said they were too tired to get out of bed. Well, I managed to get out of bed, but come 2 pm I've been back in bed again or away with the fairies for hours on the settee.
The PPI has helped tremendously with the acid reflux, but these medicines have given me a gut full of pain, tiredness, bloating, disgusting flatulence, diarrhoea, itching and my chest is 'tight '- my inhalers don't seem to be having any effect.

My scalp is itching and anyone would think I'd got a head full of lice - my eyes are itching - inside/outside my ears are itching - inside my ears are 'wet' and then they dry out and the skin crusts over.
The itching is driving me insane, I want to stick something down the canal to ease the itch, but even if I tried (which you shouldn't) I doubt I'd get deep enough inside to reach it. There was nowt wrong with my ears before I started with the medicines.

So instead of just having pain in my lower right side, I've got guts ache that 'moves around' all over my abdomen - left, right, top, bottom and the middle.
I'd been 'banging on' for months about wanting some medicine to ease the original symptoms, and instead of feeling better, I'm bluddy going backwards again.

I'm going to have to phone the Crohn's nurse tomorrow. I don't like phoning her unless I feel it's something important, but, I've given it 2 weeks and I can't go on like this trying to deal with all these 'extra' symptoms/side effects of medicines, all at the same time.

The joys of Crohn's disease ! - definitely more than just a bit of stomach ache.

Sanji x